congestive cardiac failure Heart failure
Conditions
Interventions
Arm 1. Usual care
2. Disease specific educational website (in addition to
usual care). This website is the very recently completed Dutch translation of
the European informative website about HF developed by the Heart
Sponsors
Universitair Medisch Centrum Utrecht
Eligibility
Age
18 Years to 99 Years
Inclusion criteria
Inclusion criteria: - HF established according to the guidelines of the European Society of Cardiology (ESC), and confirmed with echocardiography at least three months ago. - Sufficient cognitive and physical function to understand the aim of the study and perform or undergo the required measurements and sign informed consent. - Aged 18 years or over.
Exclusion criteria
Exclusion criteria: - Non-availability of internet and email. - Inability to work with internet and e-mail. - Inability of the patient and his/her family or care takers to read and understand Dutch.
Design outcomes
Primary
| Measure | Time frame |
|---|---|
| The primary outcomes are self care behaviour and quality of life measured with the validated European Heart Failure Self Care Behaviour Scale (EHFScB scale) and the short-form health survey with 36 questions (SF36), EuroQol 5 Dimensions (EQ-5D), and Minnesota Living with Heart Failure Questionnaire (MLHFQ) respectively. | — |
Secondary
| Measure | Time frame |
|---|---|
| Secondary outcome are all-cause mortality, HF related hospitalisations, duration of HF related hospitalisations and disease specific knowledge measured with the Dutch Heart Failure knowledge scale, heart function and evaluation of use of website measured with the *use of website* and website user satisfaction (WUS) questionnaire. A cost-effectiveness analysis will be part of the study. | — |
Countries
Netherlands
Outcome results
None listed