Measurement of upper extremity function in persons with neuromuscular diseases (NMD)

Measurement of upper extremity function in persons with neuromuscular diseases (NMD) - Upper extremity function in NMD

Status

Active, not recruiting

Phases

Unknown

Study type

Observational

Source

NL-OMON

Registry ID

NL-OMON39775

Enrollment

Registered

2012-03-14

Start date

2012-01-01

Completion date

Unknown

Last updated

2024-05-06

For informational purposes only — not medical advice. Sourced from public registries and may not reflect the latest updates. Terms

Conditions

muscular dystrophy neuromuscular diseases

Interventions

None listed

Eligibility

Age

12 Years to 99 Years

Inclusion criteria

Inclusion criteria: 6 healthy control subjects 5-10 persons with confirmed diagnosis of spinal muscular atrophy 6 persons with confirmed diagnosis of fascioscapulohumeral dystrophy 6 persons with confirmed dignosis of limb girdle muscular dystrophy All persons with a neuromuscular disease have impaired function of the upper extremity with a score on the Brooke scale of 3 or 4. All persons are able to sit in a (wheel)chair with a low back rest

Exclusion criteria

Exclusion criteria: Other diseases impairing arm function inability to come to the movement analysis laboratory inability to cooperate

Design outcomes

Primary

Measure	Time frame
Registration of single movements: Shoulder abduction (straight arm), shoulder anteflexion (straight arm) shoulder abduction (elbow flexed 90) shoulder anteflexion (elbow flexed 90) shoulder internal rotation, shoulder adduction in horizontal plane (Only with arm support) Movement Registration of functional movements: Bringing the hand to the mouth (active flexion and supination of the arm and passive pronation) Reaching to the left and right (active protraction of the scapula) Pulling and pushing a light object on a table EMG measures: m. biceps brachii - m. lateral deltoid - m. triceps brachii - m. trapezius descendens - m. pectoralis major Maximum Voluntary Contraction - m. biceps brachii - m. lateral deltoid - m. triceps brachii - m. trapezius descendens - m. pectoralis major	—

Measure

Time frame

Registration of single movements: Shoulder abduction (straight arm), shoulder anteflexion (straight arm) shoulder abduction (elbow flexed 90) shoulder anteflexion (elbow flexed 90) shoulder internal rotation, shoulder adduction in horizontal plane (Only with arm support) Movement Registration of functional movements: Bringing the hand to the mouth (active flexion and supination of the arm and passive pronation) Reaching to the left and right (active protraction of the scapula) Pulling and pushing a light object on a table EMG measures: m. biceps brachii - m. lateral deltoid - m. triceps brachii - m. trapezius descendens - m. pectoralis major Maximum Voluntary Contraction - m. biceps brachii - m. lateral deltoid - m. triceps brachii - m. trapezius descendens - m. pectoralis major

—

Secondary

Measure	Time frame
fatigue (Numeric Rating Scale) pain (Numeric Rating Scale) and location	—

Countries

Netherlands

Outcome results