Follow-Up after feToscopic sURgical intErventions: the FUTURE study

Follow-Up after feToscopic sURgical intErventions: the FUTURE study - FUTURE study

Status

Active, not recruiting

Phases

Unknown

Study type

Observational

Source

NL-OMON

Registry ID

NL-OMON39565

Enrollment

737

Registered

2012-01-26

Start date

2012-01-26

Completion date

Unknown

Last updated

2024-04-29

For informational purposes only — not medical advice. Sourced from public registries and may not reflect the latest updates. Terms

Conditions

complicated Monochorionic Monoamniotic twin pregnancies Fetal/Neonatal Alloimmune Thrombocytopenia Lower Urinary Tract Obstruction primary hydrothorax- congenital lung disease Retinopathy of Prematurity selective intrauterine growth restriction the death of a co-twin following Selective Feticide twin anemia polycythemia sequence twin-twin-transfusion syndrom

Interventions

None listed

Eligibility

Age

2 Years to 11 Years

Inclusion criteria

Inclusion criteria: All long-term survivors following fetal therapy for TTTS, Twin Anemia Polycythemia Sequence (TAPS), the death of a co-twin following Selective Feticide, selective Intra Uterine Growth Retardation (sIUGR), Monochorionic Monoamniotic twin pregnancies (MoMo twins), primary hydrothoraces, congenital lung disease, Lower Urinary Tract Obstruction (LUTO) and Fetal/Neonatal Alloimmune Thrombocytopenia (FNAIT). Children must be at least 2 years of age (corrected for prematurity) to be eligible for the study.

Exclusion criteria

Exclusion criteria: Parents with no live-born children will be excluded from asking consent for participation.

Design outcomes

Primary

Measure	Time frame
1. The incidence of developmental problems: cognitive functioning at least one standard deviation below the mean (test score	—

Countries

Netherlands

Outcome results