hereditary or familial breast cancer hereditary or familial colon cancer
Conditions
Interventions
(Index) patients in the intervention group will receive an additional
counseling session aimed at informing at risk relatives. This session will be
delivered by a psycho-social worker and will take
Sponsors
Academisch Medisch Centrum
Eligibility
Age
18 Years to 99 Years
Inclusion criteria
Inclusion criteria: Inclusion criteria for counselees: 1) index-patient (the first in their family to visit the department of Clinical Genetics for hereditary or familial colon or breast cancer), 2) at least one relative at increased risk for breast or colon cancer, i.e. eligible for genetic counseling and/or surveillance, 3) aged 18 years and over, 4) able to read and write Dutch and 5) informed consent. ;Inclusion criteria for relatives: 1) permission of the counselee, 2) aged 18 years and over, 3) able to read and write Dutch and 4) informed consent.
Exclusion criteria
Exclusion criteria: 1) mentally impaired 2) unable to independently complete a questionnaire 3) they are not literate in Dutch
Design outcomes
Primary
| Measure | Time frame |
|---|---|
| The primary outcome constitutes the degree of knowledge, motivation and self-efficay of counselees with regard to disclosing cancer risks and preventive measures to relatives. | — |
Secondary
| Measure | Time frame |
|---|---|
| secondary outcomes include: - the number and proportion of relatives informed by counselees - relatives' knowledge about hereditary cancer and preventive measures - relatives' intention to engage in genetic counseling | — |
Countries
Netherlands
Outcome results
None listed