intersekse intersex
Conditions
Interventions
None listed
Sponsors
Vrije Universiteit Medisch Centrum
Eligibility
Age
12 Years to 99 Years
Inclusion criteria
Inclusion criteria: Individuals with sex chromosome, XY DSD and XX DSD >= 16 years. Patients with psychiatric disorder will not be excluded. Their medical records are required Probands >= 16 -
Exclusion criteria
Exclusion criteria: Individuals without the mental capability to answer the questionnaires themselves Simultaneous participation in other studies investigating drugs or hormones.
Design outcomes
Primary
| Measure | Time frame |
|---|---|
| Primary study parameter(s) Health status, health related quality of life, psychological and social well-being, gender dysphoria, experiences and satisfaction with sexuality. Primary endpoints: Identification of factors influencing psychosocial adaptation including, HRQoL and social - and psychological well-being, which can be improved in future clinical care. | — |
Secondary
| Measure | Time frame |
|---|---|
| Secondary study parameter(s) Sex assignment, genital surgery, hormone therapy, metabolism, fertility, psychosocial care, satisfaction with health care, psychosexual development, and hormone treatment. Secondary endpoints: Identification of factors affecting metabolism, fertility, surgical outcome and psychosexual development, which can be changed in future clinical care. | — |
Countries
Netherlands
Outcome results
None listed