social inclusion social participation
Conditions
Interventions
In the experimental group, patients and their caregivers will receive treatment
and guidance according to the newely developed Social Fitness Programme (SFP).
SFP contains up to two interdisciplinar
Sponsors
Universitair Medisch Centrum Sint Radboud
Eligibility
Age
18 Years to 99 Years
Inclusion criteria
Inclusion criteria: Home dwelling patient with memory problems (MMSE 10-24); Who have a caregiver who is available for informal support at a minimum of one time a week. The patient and caregiver wish to maintain or improve their level of social participation, or to decrease their feelings of loneliness. Both the patient and the caregiver signed the informed consent form.
Exclusion criteria
Exclusion criteria: 1. No goals in total (patient and caregiver together) for social participation, assessed during the screening interview using the COPM. 2. People who are not capable of completing the self assessment forms (i.e. due to language problems). 3. Co-morbidity with symptoms that interfere with actively taking part in the intervention (e.g BPSD, severe heart condition). 4. Unstable use (
Design outcomes
Primary
| Measure | Time frame |
|---|---|
| The primary outcome measure is patients' and caregivers' participation in meaningful social activities, assessed with the performance and satisfaction rating of the Canadian Occupational Performance Measurement (COPM). | — |
Secondary
| Measure | Time frame |
|---|---|
| Secondary outcomes include: patients' and caregivers' quality of life (DQoL) and health related quality of life (EQ-5D); patients* mobility (TUG), caregivers* sense of competence (SCQ); resource utilization (RUD-lite) and socio-demographics. Patients' socio-demographics and frailty (EFIP) are measured as a covariate. | — |
Countries
Netherlands
Outcome results
None listed