thoughts of suicide and suicide attempt (in Huntington's disease)
Conditions
Interventions
None listed
Sponsors
Leids Universitair Medisch Centrum
Eligibility
Age
18 Years to 99 Years
Inclusion criteria
Inclusion criteria: Inclusion criteria for HD mutation carriers - Current and/or previous suicidal ideation or previous suicide attempt - Either participated in the PsychHD study and gave consent to be contacted for future research or visits the Huntington outpatient clinic during the inclusion period - Provides informed consent;Inclusion criteria for partners of HD mutation carriers - Aware of current and/or previous suicidality experiences of his/her partner - Mutation carrier gives consent to approach the partner - Provides informed consent
Exclusion criteria
Exclusion criteria: Exclusion criteria for HD mutation carriers - Lack of verbal or cognitive capacities to talk about suicidality experiences as shown during telephone contact or home-visit;Exclusion criteria for partners of HD mutation carriers - No good knowledge on Dutch language
Design outcomes
Primary
| Measure | Time frame |
|---|---|
| Focus group interviews will be carried out to describe and understand perceptions, interpretations, and beliefs of HD mutation carriers and their partners on experiencing and coping with suicidality. | — |
Countries
Netherlands
Outcome results
None listed