Duchenne
Conditions
Interventions
Boys in the intervention group will receive an assisted 3D arm training for 24
weeks. They will train both arms during 15-min sessions for 5 days per week at
home. Training will consist of a virtual
Sponsors
Universitair Medisch Centrum Sint Radboud
Eligibility
Age
2 Years to 17 Years
Inclusion criteria
Inclusion criteria: * A DNA-established diagnosis of DMD * Boys who are ambulant of wheelchair-dependent and: - can raise arms (at least one arm) above head only by flexing the elbow (shorthning the circumference of the movement) or using accessory muscles during 10 repetitions, or - cannot raise hands above head, but can raise an 8-oz glass of water to the mouth, or - can raise both hands to the mouth, but cannot raise an 8-oz glass of water to the mouth
Exclusion criteria
Exclusion criteria: * Boys
Design outcomes
Primary
| Measure | Time frame |
|---|---|
| The primary outcome will be the Motor Function Measure (MFM). | — |
Secondary
| Measure | Time frame |
|---|---|
| Secondary outcomes will be: the Abilhand, joint range of motion (ROM), muscle echo intensity (EI), lab-based structured 3D movement analysis combined with surface electromyography (sEMG), accelerometry, a quality of life questionnaire and the Performance of the upper limb for DMD (PUL). | — |
Countries
Netherlands
Outcome results
None listed