Medically Unexplained Physical Symptoms (MUPS)
Conditions
Interventions
None listed
Sponsors
Hilversum Ziekenhuis
Eligibility
Age
12 Years to 17 Years
Inclusion criteria
Inclusion criteria: - Families with healthy adolescents between 12 and 16 years - Families with adolescents between 12 and 16 years with MUPS - Families with adolecents between 12 and 16 years diagnosed with a chronic medical condition like epilepsy, asthma or diabetes type 1 and under treatment of a specialist - A minimum of 1 brother ore sister - 2 parents / guardians who are at least 5 years together
Exclusion criteria
Exclusion criteria: -Part from the patient, one ore more of the other family members currently is being treated by a medical specialist for a physical or mental disorder.
Design outcomes
Primary
| Measure | Time frame |
|---|---|
| 1. The first primary outcome measure is family functioning measured by the Family Assessment Device-N (Epstein et al, 1983). This is a questionair of 60 self-report items on a 4-point likert scale scored (1 = totally disagree, 2 = disagree, 3 = agree, 4 = completely agree). All family members fill in the FAD. Scores are summed for each subscale ore there is an average score calculated. For the scores on some scales, scores first have to be mirrored. A higher score means better family functioning. 2. The second primary outcome measure for measuring family functioning is an adaptation of the Family Adaptability and Cohesion Evaluation Scales (FACES), the Family Dimension Scale (GDS) (Neighbor Meyer & Hermans, 1988). This scale is completed by all family members. It is a self-report list of 44 items that comprise three scales (cohesion, adaption and social desirability). The questions are scored on a 4-point likert scale from "never true" to "always true" about the current perception of family functioning and the ideal perception. For social desirability only the current perception accounts. | — |
Secondary
| Measure | Time frame |
|---|---|
| 1. The autonomy experienced by young people is measured by the Adolescent Autonomy Questionnaire-B (Noom et al, 2001). It is a self-report questionnaire comprising 15 items with three dimensions of autonomy that are being distinguished: (1) attitudinal autonomy or the extent to which the adolescent himself can attain a goal, provide alternatives to consider and take a decision (eg "I make quick choices. "), (2) emotional autonomy or the extent to which the adolescent has confidence in his own choices and goals (eg" If I disagree with others, I say that. "), and (3) functional autonomy or the extent to which the adolescent can develop strategies to one's own goal (eg "I usually go right to my goal."). 2. The Frost Multidimensional Perfectionism Scale (Frost & Marten, 1990) is a self-report questionnaire comprising 35 items which has six dimensions of perfectionism that can be distinguished: 1. The Concern over Mistakes (CM), 2. Personal Standards (PS) 3. Parent Expectations (PE) scale. 4. Parental Criticism (PC) scale. Doubting of Actions 5 (D) 6. Organization (O). 3. The CBSA (perceived competence scale for adolescents) (Treffers et al, 2002) consists of seven subscales each consisting of five items (35 items total). For each item, two groups of youths are described. The younger marks to which group of young people he / she belongs and whether he belongs "completely" or "a little" to the group. For the present study the academic skills subscale will be used. 4.De reaction of parents towards odolescents with SOLK measured by the Illness Behavior Encouragement Scale (Walker & Zeman, 1992). It is a questionnaire with 12 items maesuring the behavioral response of parents to children who are ill or sickly. The list has a parent and child versions. 5. The 4 Dimensional Symptom Questionnaire (Terluin, 1998) is a questionnaire that was developed within the general practice and consists of 50 items, 16 items for Distress, 6 items for depression, 12 | — |
Countries
Netherlands
Outcome results
None listed