Taste, Speech and oro-facial relations following partial tongue reduction: A single-center, longitudinal, functional outcome study in patients with Beckwith-Wiedemann Syndrome that have undergone tongue reduction surgery

Taste, Speech and oro-facial relations following partial tongue reduction: A single-center, longitudinal, functional outcome study in patients with Beckwith-Wiedemann Syndrome that have undergone tongue reduction surgery - TAste, Speech and TEeth after tongue reduction surgery TASTE-study

Status

Active, not recruiting

Phases

Unknown

Study type

Observational

Source

NL-OMON

Registry ID

NL-OMON36543

Enrollment

Registered

2011-10-11

Start date

2011-07-01

Completion date

Unknown

Last updated

2024-04-29

For informational purposes only — not medical advice. Sourced from public registries and may not reflect the latest updates. Terms

Conditions

Congenital enlarged tongue

Interventions

None listed

Eligibility

Age

2 Years to 99 Years

Inclusion criteria

Inclusion criteria: - Written informed consent - History of macroglossia - Patients included in the control group have been diagnosed with BWS and were not treated for macroglossia - 5 years

Exclusion criteria

Exclusion criteria: - Serious mental impairment - History or presence of a medical condition that can influence speech, such as cleft palate, hearing problems or other problems that can potentially cause a developmental delay - History or presence of a medical condition that can potentially influence taste perception - History or presence of a medical condition that can potentially influence normal oro-facial development

Design outcomes

Primary

Measure	Time frame
In total, all participants will visit the outpatient clinic of our craniofacial research unit one single time to complete the study. Differences in the outcome of the taste test, the speech assessment test and the evaluation of the oro-facial development between the study group and the none-operated control group will be evaluated.	—

Secondary

Measure	Time frame
Niet van toepassing	—

Countries

Netherlands

Outcome results