alzheimer's disease dementia
Conditions
Interventions
None listed
Sponsors
Eligibility
Inclusion criteria
Inclusion criteria: Informal caregivers (healthy persons): 1. Taking main responsibility for informal care 2. Good command of Dutch Patients: 1. Diagnosed by a GP or medical specialist. 2. Informal care provided 3. Good command of Dutch
Exclusion criteria
Exclusion criteria: Informal caregiver: 1. bedridden or terminal illness;Patients: 1. terminal illness 2. long term admission to a nursing or elderly home expected within a period of 6 months 3. case management is not permitted in usual care regions
Design outcomes
Primary
| Measure | Time frame |
|---|---|
| - Frequency and severity of behavioural problems of patients (NPI-Q symptoms) and the stress this causes to informal carers (NPI-Q distress)- -- Psychopathology (GHQ12) in the caregiver | — |
Secondary
| Measure | Time frame |
|---|---|
| - Quality of life (pt: QoL-AD en EQ-5D+c, carer: EQ-5D), and functioning (Katz-ADL) - Care load of informal carers (CarerQoL) - Met and unmet care needs of informal carers (CANE) - (Cost of) care usage | — |
Countries
Netherlands