Bone density as outcome parameter in haemophilia treatment

Bone density as outcome parameter in haemophilia treatment - bone density in haemophilia

Status

Active, not recruiting

Phases

Unknown

Study type

Observational

Source

NL-OMON

Registry ID

NL-OMON36273

Enrollment

Registered

2010-09-29

Start date

2010-12-13

Completion date

Unknown

Last updated

2024-05-06

For informational purposes only — not medical advice. Sourced from public registries and may not reflect the latest updates. Terms

Conditions

brittle bones disease osteoporosis

Interventions

None listed

Eligibility

Age

18 Years to 99 Years

Inclusion criteria

Inclusion criteria: Severe haemophilia (FVIII/IX

Exclusion criteria

Exclusion criteria: inhibitors against FVIII/IX malignant bone metastasis present currently treated with corticosteroids weight > 135 kilogram

Design outcomes

Primary

Measure	Time frame
Bone densitometry results total BMD, expressed as Z score	—

Secondary

Measure	Time frame
Physical activity measured by the MAQ questionnaire (short version, self adiministered- (already collected for Dutch patients) Joint status using the Hhaemophilia Joint Health Score-(already collected for Dutch patients)	—

Countries

Netherlands

Outcome results