Euthanasia and physician assisted suicide in Huntington's disease, an investigation amongst patients and physicians.

Euthanasia and physician assisted suicide in Huntington's disease, an investigation amongst patients and physicians. - Euthanasia in Huntington's Disease

Status

Active, not recruiting

Phases

Unknown

Study type

Observational

Source

NL-OMON

Registry ID

NL-OMON36108

Enrollment

300

Registered

2011-08-19

Start date

2012-01-06

Completion date

Unknown

Last updated

2024-10-15

For informational purposes only — not medical advice. Sourced from public registries and may not reflect the latest updates. Terms

Conditions

chorea of Huntington Huntington's disease

Interventions

None listed

Eligibility

Age

18 Years to 99 Years

Inclusion criteria

Inclusion criteria: Known gene carrier of Huntington's disease (HD), pre-manifest or manifest. Over the age of 18. Partner of family member of a gene carrier available Patients have to be able to communicate, written or oral

Exclusion criteria

Exclusion criteria: Decline informed consent Gene carriers suffering from severe depression. Patients or gene carriers who are suicidal Patients who have an addiction to alcohol or drugs, which changes their judgement

Design outcomes

Primary

Measure	Time frame
Evaluation of thoughts about and use of euthanasia or physician assisted suicide in The Netherlands and surrounding European countries with physicians. Evaluation of thoughts about and use of euthanasia or physician assisted suicide in The Netherlands and surrounding European countries with patients	—

Secondary

Measure	Time frame
When investigating this subject, we must consider the law. Are there any legal rules on the subject to which a physician must comply? Can we see a change in attitude among politicians and changes in the law regarding the subject of euthanasia?	—

Countries

Netherlands

Outcome results