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Adolescents with Medically Unexplained Physical Problems: Family functioning, upbringing and parent characteristics

Adolescents with Medically Unexplained Physical Problems: Family functioning, upbringing and parent characteristics - MUPS and Family Functioning

Status
Unknown
Phases
Unknown
Study type
Observational
Source
NL-OMON
Registry ID
NL-OMON35842
Enrollment
128
Registered
2011-04-26
Start date
Unknown
Completion date
Unknown
Last updated
2024-04-29

For informational purposes only — not medical advice. Sourced from public registries and may not reflect the latest updates. Terms

Conditions

functional complaints Uncomprehended physical complaints

Interventions

None listed

Sponsors

Hilversum Ziekenhuis
Lead Sponsor

Eligibility

Age
12 Years to 99 Years

Inclusion criteria

Inclusion criteria: - Families with adolescents between 12 and 19 years with MUPS according to the DSMIVTR criteria and under treatment of a specialist. - Families with adolecents between 12 and 19 years diagnosed with a chronic medical condition such as epilepsy, asthma or diabetes type 1 and under treatment of a specialist. - Fluency written and spoken Dutch language. - Psychiatric and somatic comorbidity is allowed provided that it is of subordinate nature.

Exclusion criteria

Exclusion criteria: -Insufficient comprehension of Dutch language. -Patients with serious psychiatric comorbity.

Design outcomes

Primary

MeasureTime frame
1. The first primary outcome is family functioning measured by the Family Assessment Device-N (Epstein et al, 1983). This is a questionaire of 60 self-report items on a 4-point likert scale (1 = totally disagree, 2 = disagree, 3 = agree, 4 = completely agree). All family members fill in the FAD. Scores are added for each subscale or an average score is calculated. Scores on some scales first have to be mirrored. A higher score means better family functioning. 2. The second primary outcome for measuring family functioning is an adaptation of the Family Adaptability and Cohesion Evaluation Scales (FACES), namely, the Family Dimension Scale (GDS) (Neighbor Meyer & Hermans, 1988). This scale is completed by all family members. It is a self-report list of 44 items that consists of three scales (cohesion, adaption and social desirability). The questions about current perception of family functioning and ideal perception are scored on a 4-point likert scale from "never true" to "always true". For social desirability only the current perception is taken into account. 3. The thirth primary outcome is the reaction of parents towards adolescents with SOLK measured by the Illness Behavior Encouragement Scale (Walker & Zeman, 1992). It is a questionnaire with 12 items measuring the behavioral response of parents to children who are ill or appear sick. The list has a parent and child version. 4. The fourth primary outcome, the 4 Dimensional Symptom Questionnaire (Terluin, 1998) is a questionnaire that was developed in the field of general practice and consists of 50 items, namely, 16 items for distress, 6 items for depression, 12 items for anxiety and 16 items for somatization. 5. The fifth primary outcome, the experienced physical symptoms, is measured using the Somatic Complaint List-2 (Jellesma, et al, 2007). The SCL-2 is a self-report questionnaire in English and Dutch. This questionnaire was established through observations of school teachers. For

Secondary

MeasureTime frame
0

Countries

Netherlands

Outcome results

None listed

Source: NL-OMON (via WHO ICTRP)