diabetes muscular disease
Conditions
Interventions
None listed
Sponsors
TNO
Eligibility
Age
12 Years to 99 Years
Inclusion criteria
Inclusion criteria: Participants who - either have diabetes (type 1 or 2) or a progressive muscular disease (Duchenne; SMA spinal muscular atrofy type 2; or HMSN hereditary motor and sensory neuropathy) - are 12 to 18 years old - according to their physician take care of their disease at least reasonably well and/or have a constructive attitude towards living with their disease - indicate that they are at least reasonably happy (Affective evaluation). At least report mark 6 on the item: All things taken together, how happy or unhappy are you? - indicate that they are at least reasonably satisfied with their life (Cognitive evaluation). At least report mark 6 on the item: Considering your life as a whole, have you achieved the most important things you want in life?
Exclusion criteria
Exclusion criteria: - not meeting the above inclusion criteria - non-availability of a computer with internet access at home
Design outcomes
Primary
| Measure | Time frame |
|---|---|
| The research variables are: - participants' descriptions of having a good life - participants' descriptions of factors that contribute to having a good life and to finding a balance between a good life and taking care of their illness; this will mostly concren skills, competencies and character traits. | — |
Countries
Netherlands
Outcome results
None listed