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A genetic follow up study in Turner syndrome

A genetic follow up study in Turner syndrome - Genetic follow up in Turner syndrome

Status
Unknown
Phases
Unknown
Study type
Observational
Source
NL-OMON
Registry ID
NL-OMON34852
Enrollment
85
Registered
2010-04-26
Start date
Unknown
Completion date
Unknown
Last updated
2024-05-06

For informational purposes only — not medical advice. Sourced from public registries and may not reflect the latest updates. Terms

Conditions

patients with 45 Patients with Turner syndrome X.

Interventions

None listed

Sponsors

Leids Universitair Medisch Centrum
Lead Sponsor

Eligibility

Age
18 Years to 99 Years

Inclusion criteria

Inclusion criteria: Patients with Turner syndrome who have been participating in one of the following studies: MEC: GHTUR/BPD/13NL and MEC: GHTUR/BPD/12NL (the inclusion criteria of the original protocols are described in the protocol at page 14).

Exclusion criteria

Exclusion criteria: The exclusion criteria are those of the original protocols: MEC: GHTUR/BPD/13NL and MEC: GHTUR/BPD/12NL ((the exclusion criteria of the original protocols are described in the protocol at page 15).

Design outcomes

Primary

MeasureTime frame
The frequency of hidden mosaicism, including Y chromosomal material, in 45,X females. The effects of different GH regimens will be analyzed to a background of genotypic variation of the sex chromosomes and the growth hormone receptor. The clinical parameters (aortic diameter and distensibility, congenital cardiac malformations, lipid profile, final height and final height gain) are already assessed in the original studies.

Secondary

MeasureTime frame
not applicable.

Countries

Netherlands

Outcome results

None listed

Source: NL-OMON (via WHO ICTRP)