de terminale levensfase als gevolg van a) kanker of b) COPD n.v.t.
Conditions
Interventions
A telemedicine-application, installed at the patient*s home for the purpose of
a weekly palliative care teleconversation between the patient and the medical
specialist
Sponsors
Universitair Medisch Centrum Sint Radboud
Eligibility
Age
18 Years to 99 Years
Inclusion criteria
Inclusion criteria: GP's: • are willing to participate in the study, i.e. willing to make time for the implementation of TM in their daily practice, to make time for interviews with the researcher, and leave room for their patients to participate in this research. • have to be willing to resolve patient*s issues, caused unintentionally by the interviews. • have shown some affection with research in the past.;The sample of gp*s will vary on: • willingness to adopt advanced communication technologies • the experience with treating and caring for palliative patients. ;PATIENTS: • Patients are included if they either a) suffer of cancer or b) suffer of COPD . * The patient finds him-/herself in a progressive palliative phase (Karnofsky-score
Exclusion criteria
Exclusion criteria: • The patient is incompetent. • The patient wishes to die in a hospice. • The patient does not speak and/or understand Dutch.
Design outcomes
Primary
| Measure | Time frame |
|---|---|
| • Participants* experiences of the use of telemedicine in the practice of home based palliative care. • The (moral) acceptability of telemedicine in palliative care. | — |
Secondary
| Measure | Time frame |
|---|---|
| • The absorption of the telemedicine-application into existing palliative care giving and/or social routines, or the creation of new routines for the telemedicine-application. • Communication patterns (in terms of transmission, registration, consultation, and conversation) facilitated by the telemedicine-application. • The consequences of the mediation by the telemedicine-application for communication in existing or new supportive and/or care giving relationships (in terms of maintenance, elaboration, and modification). • (Normative) evaluation of the *fit* of telemedicine in participants* and bioethicists* conceptions about a *good death* and *good palliative care*. • (Normative) evaluation of the effects of telemedicine on the patient*s position in his/her own care process. | — |
Countries
Netherlands
Outcome results
None listed