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Developing a measurement protocol for upper extremity function in boys with Duchenne muscular dystrophy

Developing a measurement protocol for upper extremity function in boys with Duchenne muscular dystrophy - UEF study

Status
Active, not recruiting
Phases
Unknown
Study type
Observational
Source
NL-OMON
Registry ID
NL-OMON34431
Enrollment
7
Registered
2010-10-06
Start date
2010-10-07
Completion date
Unknown
Last updated
2024-05-06

For informational purposes only — not medical advice. Sourced from public registries and may not reflect the latest updates. Terms

Conditions

Duchenne muscular Dystrophy (DMD) muscular dystrophy

Interventions

None listed

Sponsors

Universitair Medisch Centrum Sint Radboud
Lead Sponsor

Eligibility

Age
2 Years to 17 Years

Inclusion criteria

Inclusion criteria: DNA established diagnosis of DMD Boys who are at the end of their ambulation or are recently wheelchair confined Boys that are able to sit for 20 minutes without arm and with back support Boys who have Brooke scale one or two (able to raise hands above the head)

Exclusion criteria

Exclusion criteria: Other disabling diseases influencing upper extremity mobility Boys

Design outcomes

Primary

MeasureTime frame
The primary outcome measures of this study are the kinematics of the elbow and shoulder, the active range of motion (ROM) of the elbow and shoulder and the normalized EMG signal.

Secondary

MeasureTime frame
Secundary outcome measures are kinematics of the head and the thorso.

Countries

Netherlands

Outcome results

None listed

Source: NL-OMON (via WHO ICTRP)