Cerebral palsy Infantile Encefalopathy
Conditions
Interventions
The intervention *Active Lifestyle and Sports Participation* consists of 3
parts:
1. Personal counseling
this part aims to achieve a behavioral change towards a
more active lifestyle by means of 6 individual counseling sessions with a
personal coach. This part of the intervention is based on the *Stage
6 months.
2. Fitness training
this part aims to improve the physical fitness of the
participants and consists of group training sessions in the centre and home
training sessions (both 1 hour / week). The training is directed to
This part of the intervention consists of 2 to 5
counseling sessions with a sports counsellor where the preferences and
possibilities of sports activities are discussed. In this way the sports
coun
Sponsors
Erasmus MC, Universitair Medisch Centrum Rotterdam
Eligibility
Age
12 Years to 99 Years
Inclusion criteria
Inclusion criteria: 1. Spastic CP patients. 2. Adolescents and young adults (16 - 24 years). 3. Gross Motor Function Classification System (GMFCS); level I - IV will be included.
Exclusion criteria
Exclusion criteria: 1. Other disorders that may interfere with the measurements. 2. Contra-indication (maximal) exercise. 3. Not able to understand the purpose of the research due to insufficient knowledge of the dutch language or cognitive or any other disorders 4. High baseline level regarding physical activity
Design outcomes
Primary
| Measure | Time frame |
|---|---|
| 1. The level of daily activity, measured with an ambulant activity monitor. By use of this monitor the following parameters will be calculated: - Duration of dynamic activities - duration of static activities -number of transitions - number of perionds of continuous dynamic activities - distribution of perionds of continuous dynamic activities - Motility (movement intensity) 2. Physicall fitness which is subdiveded into cardiorespiratory (obtained during progressive cycling or armcranking test and 6 minute walking or wheelchair riding test), neuromuscular (obtained with hand held dynamometry) and metabolic fitness (obtained with heigth, waist circumference, weight, BMI and skinfold test). | — |
Secondary
| Measure | Time frame |
|---|---|
| The secondary outcome measures of this study are: Fatigue - Fatigue severity questionnaire (FSS) - VAS - Checklist individual strength Participation - Life habits 3.0, shortened version questionnaire Quality of life -Short Form 36 questionnaire Capacity for mobility related activities - Lateral step up test (number of lateral step ups in 15 seconds). - The Timed Stairs Test (required time to walk up and down the stairs). - Gross motor activities (measured with the GMFM, dimension d & e). | — |
Countries
Netherlands
Outcome results
None listed