Child and Family Adjustment in Epilepsy

Child and Family Adjustment in Epilepsy - Adjustment in Pediatric Epilepsy

Status

Active, not recruiting

Phases

Unknown

Study type

Observational

Source

NL-OMON

Registry ID

NL-OMON32337

Enrollment

180

Registered

2008-05-20

Start date

2008-03-01

Completion date

Unknown

Last updated

2024-05-13

For informational purposes only — not medical advice. Sourced from public registries and may not reflect the latest updates. Terms

Conditions

gedragsproblemen (CBCL) behavior problems

Interventions

None listed

Eligibility

Age

2 Years to 99 Years

Inclusion criteria

Inclusion criteria: Participants are included in the study according to the following inclusion criteria: A). The child is between 6 and 12 years. B). The child is diagnosed with epilepsy. C). The child has an IQ above 70 points (no mental retardation). D). Parents and children speak and understand the Dutch Language adequately in order to complete the questionnaires.

Exclusion criteria

Exclusion criteria: A). The child is diagnosed with another chronic disorder than epilepsy. B). The child has pseudoseizures or a history of pseudoseizures. C). The child has previously undergone brain surgery.

Design outcomes

Primary

Measure	Time frame
(see methods in protocol) Epilepsy: direct (e.g.,. syndrome severity, seizure frequency, side effects anti epileptic drugs) Epilepsy : indirect (e.g., parental anxiety about epilepsy[Parental Anxiety about Epilepsie Questionnaire, PAE]; parental perception about epilepsy severity, functional status [FSII], restrictions due to epilepsy [The Hague Restrictions in Childhood Epilepsy Scale, HARCES]). Behavior Problems / Psychopathology (Child Behavior Checklist, CBCL). Self Perception (Self Perception Profile for Children, SPPC) Parenting (e.g., Parent Report of Parental Behavior Inventory, PRPBI) Parenting stress (Parenting Stress Index, PSI). Pediatric parenting stress (The Pediatric Inventory for Parents, PIP). Parental pediatric perceptions (e.g., child vulnerability, Child Vulnerability Scale, CVS)	—

Measure

Time frame

(see methods in protocol) Epilepsy: direct (e.g.,. syndrome severity, seizure frequency, side effects anti epileptic drugs) Epilepsy : indirect (e.g., parental anxiety about epilepsy[Parental Anxiety about Epilepsie Questionnaire, PAE]; parental perception about epilepsy severity, functional status [FSII], restrictions due to epilepsy [The Hague Restrictions in Childhood Epilepsy Scale, HARCES]). Behavior Problems / Psychopathology (Child Behavior Checklist, CBCL). Self Perception (Self Perception Profile for Children, SPPC) Parenting (e.g., Parent Report of Parental Behavior Inventory, PRPBI) Parenting stress (Parenting Stress Index, PSI). Pediatric parenting stress (The Pediatric Inventory for Parents, PIP). Parental pediatric perceptions (e.g., child vulnerability, Child Vulnerability Scale, CVS)

—

Secondary

Measure	Time frame
See protocol	—

Countries

Netherlands

Outcome results