Health-related quality of life in high-grade glioma patients and their partners in the end-of-life phase: a retrospective multi-centre analysis

*Health-related quality of life in high-grade glioma patients and their partners in the end-of-life phase: a retrospective multi-centre analysis* - HRQOL in the end-of-life phase of HGG patients

Status

Recruiting

Phases

Unknown

Study type

Observational

Source

NL-OMON

Registry ID

NL-OMON32132

Enrollment

200

Registered

2008-09-08

Start date

2008-10-27

Completion date

Unknown

Last updated

2024-05-06

For informational purposes only — not medical advice. Sourced from public registries and may not reflect the latest updates. Terms

Conditions

malignant brain tumour malignant glioma

Interventions

None listed

Eligibility

Age

18 Years to 99 Years

Inclusion criteria

Inclusion criteria: relatives of deceased high grade glioma patients >18 yrs at time of diagnosis, diagnosed in 2005 and 2006

Exclusion criteria

Exclusion criteria: all patients who did not (yet) die or whose dead was not retraceable

Design outcomes

Primary

Measure	Time frame
Clinical data from medical records in the corresponding hospitals; data from medical records of primary care physicians. Data from questionnaires sent to general practitioners, relatives and other caregivers. Data collected from interviews with relatives of HGG patients, general practitioners, and other caregivers.	—

Secondary

Measure	Time frame
The information about the end-of-life phase in HGG patients and potential shortcomings obtained in this pilot study, will be used to design a prospective, nation-wide study in the future in which we attempt to improve the end-of-life care for the patients and their relatives. Data obtained can also be translated into improved guidelines for the caregivers of HGG patients.	—

Countries

Netherlands

Outcome results