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Proxy measurements in Multiple Sclerosis

Proxy measurements in Multiple Sclerosis - Proxy measurements in Multiple Sclerosis

Status
Active, not recruiting
Phases
Unknown
Study type
Observational
Source
NL-OMON
Registry ID
NL-OMON31939
Enrollment
300
Registered
2008-12-23
Start date
2008-12-30
Completion date
Unknown
Last updated
2024-12-02

For informational purposes only — not medical advice. Sourced from public registries and may not reflect the latest updates. Terms

Conditions

Multiple Sclerosis

Interventions

None listed

Sponsors

Vrije Universiteit Medisch Centrum
Lead Sponsor

Eligibility

Age
18 Years to 99 Years

Inclusion criteria

Inclusion criteria: Inclusion criteria patients: 1. Adult (>18 years) 2. Multiple Sclerosis according to McDonald criteria 3. Signed informed consent;Inclusion criteria proxy respondents: 1. Adult (>18 years) 2. Partner of the patient 3. Signed informed consent

Exclusion criteria

Exclusion criteria: Exclusion criteria patients: 1. Severe cognitive impairment which makes it impossible to complete a questionnaire. 2. When the patient does not have a partner;Exclusion criteria proxy respondents: 1. When the proxy respondent is not the partner of the patient

Design outcomes

Primary

MeasureTime frame
- patient-proxy agreement - factors that can influence the patient-proxy agreement

Countries

Netherlands

Outcome results

None listed

Source: NL-OMON (via WHO ICTRP)