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Extra-intestinal manifestations in patients with MYH-associated polyposis (MAP)

Extra-intestinal manifestations in patients with MYH-associated polyposis (MAP) - Extra-intestinal manifestations in MYH-associated polyposis (MAP)

Status
Active, not recruiting
Phases
Unknown
Study type
Observational
Source
NL-OMON
Registry ID
NL-OMON31226
Enrollment
17
Registered
2007-09-25
Start date
2007-09-01
Completion date
Unknown
Last updated
2024-05-13

For informational purposes only — not medical advice. Sourced from public registries and may not reflect the latest updates. Terms

Conditions

hereditary colorectal cancer MAP

Interventions

None listed

Sponsors

Academisch Medisch Centrum
Lead Sponsor

Eligibility

Age
18 Years to 99 Years

Inclusion criteria

Inclusion criteria: Patients with a germline bi-allelic MYH mutation

Exclusion criteria

Exclusion criteria: age less than 18 years

Design outcomes

Primary

MeasureTime frame
The occurrence, distribution and phenotype of extra-intestinal manifestations in patients with MAP will be noted and described. Furthermore, the sensitivity and specificity will be calculated for these lesions in MAP patients.

Secondary

MeasureTime frame
none.

Countries

Netherlands

Outcome results

None listed

Source: NL-OMON (via WHO ICTRP)