Ferriprive anemia in patients with erythropoietic protoporphyria

Ferriprive anemia in patients with erythropoietic protoporphyria - Iron, anemia and protoporphyria

Status

Active, not recruiting

Phases

Unknown

Study type

Observational

Source

NL-OMON

Registry ID

NL-OMON31219

Enrollment

Registered

2007-07-26

Start date

2007-08-28

Completion date

Unknown

Last updated

2024-08-19

For informational purposes only — not medical advice. Sourced from public registries and may not reflect the latest updates. Terms

Conditions

cutaneous porphyria EPP

Interventions

None listed

Eligibility

Age

18 Years to 99 Years

Inclusion criteria

Inclusion criteria: - Known diagnosis of erythropoietic protoporphyria - age = 18 years or older

Exclusion criteria

Exclusion criteria: none

Design outcomes

Primary

Measure	Time frame
The primary study variables are: - The amount of protoporphyrin, the activity of the enzyme ferrochelatase, the liver functions and the score of the quality of life questionnaire show the gravity of the symptoms of EPP - The presence or not of a low amount of hemoglobin - The presence or not of iron deficiency	—

Secondary

Measure	Time frame
n.a.	—

Countries

Netherlands

Outcome results