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A European Study to identify the needs of individuals and families affected by Juvenile Huntington's Disease

A European Study to identify the needs of individuals and families affected by Juvenile Huntington's Disease - Juvenile Huntington's Disease

Status
Active, not recruiting
Phases
Unknown
Study type
Observational
Source
NL-OMON
Registry ID
NL-OMON30947
Enrollment
2
Registered
2007-07-18
Start date
2007-03-01
Completion date
Unknown
Last updated
2024-05-13

For informational purposes only — not medical advice. Sourced from public registries and may not reflect the latest updates. Terms

Conditions

Huntington's disease in childhood

Interventions

None listed

Sponsors

European Huntington's Disease Network
Lead Sponsor

Eligibility

Age
18 Years to 99 Years

Inclusion criteria

Inclusion criteria: families with a patient with diagnosed juvenile Hungton's disease (onset under 18 years)

Exclusion criteria

Exclusion criteria: absence of informed consent

Design outcomes

Primary

MeasureTime frame
none

Secondary

MeasureTime frame
none

Countries

Netherlands

Outcome results

None listed

Source: NL-OMON (via WHO ICTRP)