Long-term follow-up in patients with congenital anatomical malformations.

Long-term follow-up in patients with congenital anatomical malformations. - LTFU

Status

Recruiting

Phases

Unknown

Study type

Observational

Source

NL-OMON

Registry ID

NL-OMON30692

Enrollment

700

Registered

2007-05-22

Start date

2008-01-02

Completion date

Unknown

Last updated

2024-05-13

For informational purposes only — not medical advice. Sourced from public registries and may not reflect the latest updates. Terms

Conditions

anatomical birth defect congenital anatomical malformation

Interventions

None listed

Eligibility

Age

12 Years to 99 Years

Inclusion criteria

Inclusion criteria: Patients born between 1988 and 2000 who were treated in the Sophia Children's hospital with a congenital diaphragmatic hernia, CCAML, esophageal atresia, intestinal atresia, abdominal wall defect, M. Hirschsprung, anorectal malformation and sacrococcygeal teratoma

Exclusion criteria

Exclusion criteria: Lacking parental and/or patients informed consent

Design outcomes

Primary

Measure	Time frame
For each diagnosis assessment of : Medical problems Psychological functioning Condition, motorical abilities, strenght, mobility Quality of life, experience of illness Social and environmental functioning (school, profession)	—

Secondary

Measure	Time frame
The amount of patients who still have complaints at the age of 18 years and need to be transferred to the adult health care	—

Countries

Netherlands

Outcome results