Duchenne from the third Decade (3D) Functioning, quality of life and needs of health care in adults with Duchenne Muscular Dystrophy and their informal caregivers.

Duchenne from the third Decade (3D) Functioning, quality of life and needs of health care in adults with Duchenne Muscular Dystrophy and their informal caregivers. - Duchenne from the third Decade (3D)

Status

Recruiting

Phases

Unknown

Study type

Observational

Source

NL-OMON

Registry ID

NL-OMON30601

Enrollment

230

Registered

2007-02-06

Start date

2007-06-01

Completion date

Unknown

Last updated

2024-05-13

For informational purposes only — not medical advice. Sourced from public registries and may not reflect the latest updates. Terms

Conditions

Duchenne muscular dystrophy

Interventions

None listed

Eligibility

Age

18 Years to 99 Years

Inclusion criteria

Inclusion criteria: Confirmed diagnosis of DMD (Criteria Emery) Age over 19

Exclusion criteria

Exclusion criteria: None

Design outcomes

Primary

Measure	Time frame
Functional level of adults with DMD Quality of life of adults with DMD Determinants of functional level and quality of life Burden of informal caregivers of adults with DMD Quality of life of caregivers of adults with DMD Determinants of burden and quality of life Needs of care of adults with DMD	—

Secondary

Measure	Time frame
a.o. prevalence co-morbidity	—

Countries

Netherlands

Outcome results