uitbehandelde aandoeningen unbearable suffering
Conditions
Interventions
None listed
Sponsors
Universitair Medisch Centrum Sint Radboud
Eligibility
Age
18 Years to 99 Years
Inclusion criteria
Inclusion criteria: being able to give informed consent, having a non treatable disease, unbearable suffering
Exclusion criteria
Exclusion criteria: not relevant
Design outcomes
Primary
| Measure | Time frame |
|---|---|
| There are currently no empirical data available that describe the elements of the concept of unbearable suffering as used by patients, caregivers, treating physicians, and consulted doctors in a request for EAS. As a consequence every phycisian has to develop his or her own frame of reference. There is no validated checlkist referring to unbearable suffering that takes into account the opinions of patients who ask for EAS. The use of a checklist might help physicians and patients to come to a more coherentdecision making for decosions with a high impact on the quality of the last phase of life of patients, and on the well-being of their families. | — |
Secondary
| Measure | Time frame |
|---|---|
| not relevant | — |
Countries
Netherlands
Outcome results
None listed