Neurocognitive functioning in school-aged cystinosis patients: general effects of chronic disease or specific deficits?

Neurocognitive functioning in school-aged cystinosis patients: general effects of chronic disease or specific deficits? - Neurocognitive functioning in school-aged cystinosis patients

Status

Active, not recruiting

Phases

Unknown

Study type

Observational

Source

NL-OMON

Registry ID

NL-OMON30443

Enrollment

Registered

2007-11-13

Start date

2007-04-01

Completion date

Unknown

Last updated

2024-05-13

For informational purposes only — not medical advice. Sourced from public registries and may not reflect the latest updates. Terms

Conditions

cystine accumulation disease

Interventions

None listed

Eligibility

Age

2 Years to 17 Years

Inclusion criteria

Inclusion criteria: -treated for cystinosis in a Dutch UMC -school-aged (6-18 years)

Exclusion criteria

Exclusion criteria: -mental retardation (not being able to perform tests) -medical or psychiatric co-morbidity -insufficient knowledge of the Dutch language

Design outcomes

Primary

Measure	Time frame
-total intelligence, verbal and performal intelligence -neurocognitive functioning -perceptual (visual)-motor functioning -behavioural- and schoolproblems	—

Secondary

Measure	Time frame
-quality of life -subjective parental stress	—

Countries

Netherlands

Outcome results