Needs and problems of patients with a mitochondrial disease in the Netherlands. Open interviews according to the grounded theory approach

Needs and problems of patients with a mitochondrial disease in the Netherlands. Open interviews according to the grounded theory approach - Needs and problems of patients with a mitochondrial disease.

Status

Active, not recruiting

Phases

Unknown

Study type

Observational

Source

NL-OMON

Registry ID

NL-OMON30378

Enrollment

Registered

2007-03-12

Start date

2007-01-01

Completion date

Unknown

Last updated

2024-06-18

For informational purposes only — not medical advice. Sourced from public registries and may not reflect the latest updates. Terms

Conditions

mitochondrial disease

Interventions

None listed

Eligibility

Age

18 Years to 99 Years

Inclusion criteria

Inclusion criteria: Patients 1. with a determined mitochondrial disease 2. who are 18 years or older 3. who are able to to give informed consent 4. Living in the Netherlands and the Dutch language adequate speaking.

Exclusion criteria

Exclusion criteria: Iedereen die niet voldoet aan de inclusiecriteria.

Design outcomes

Primary

Measure	Time frame
Engelse tekst volgt indien onderzoeksvoorstel definitief moet worden voorgelegd aan de METC (in overleg met mevrouw Lilian Damen).	—

Secondary

Measure	Time frame
Engelse tekst volgt indien onderzoeksvoorstel definitief moet worden voorgelegd aan de METC (in overleg met mevrouw Lilian Damen).	—

Countries

Netherlands

Outcome results