Tertiary Prevention, Cancer survivors, Cancer Aftercare, Disease self-management, Social support, Lifestyle, Quality of life, Psychosocial distress.
Conditions
Interventions
Cancer survivors in the experimental group who enter the online portal receive general information on dealing with distress, obtaining social support, disease self-management, and optimizing healthy l
Sponsors
Open University of the Netherlands, Maastricht University
Eligibility
Inclusion criteria
Inclusion criteria: 1. 18 years of age or older; 2. Patients who were previously diagnosed with cancer; 3. Successful completion of the main treatment period, up to one year ago; 4. People who receive aftercare (e.g., preventive hormonal therapy) or medical check-ups are allowed to participate; 5. No cancer during last medical check-up; 6. Patients with all types of cancer are allowed to participate; no groups are excluded (on condition that the main treatment period is successfully completed); 7. Ability to speak and read the Dutch language; 8. Access to the web and minimal internet experience (monthly access).
Exclusion criteria
Exclusion criteria: Patients with a serious medical, psychiatric, or cognitive disease that would interfere with participation.
Design outcomes
Primary
| Measure | Time frame |
|---|---|
| 1. The extent of psychosocial distress; 2. Health related quality of life in patients. Psychosocial distress will be measured with the General Health Questionnaire – 12 item version (GHQ-12) and the Hospital Anxiety and Depression Scale (HADS). Quality of life will be measured with the European Organization for Research and Treatment of Cancer, Quality of Life Questionnaire (EORTC QLQ-C30). Both primary outcomes will be assessed at all time points. | — |
Secondary
| Measure | Time frame |
|---|---|
| 1. Lifestyle behaviors; 2. Coping behaviors; 3. Self-management & problem solving behaviors; 4. Empowerment; 5. Perceived social support. Physical activity will be measured with the SQUASH; a validated physical activity measure. Smoking behavior will be measured with a validated 7-days recall questionnaire. Alcohol consumption will be measured with a standardized scale to assess the amount of alcohol consumption. Dietary behaviors will be measured by validated food frequency questionnaires on respectively saturated fat-intake and vegetable and fruit consumption. Habit strength will be measured by means of the Self-Report Habit Strength Index. Self management is operationalized as problem-solving. It will be measured using the SPSI-R, a self-report questionnaire. Empowerment will be measured with a short validated questionnaire. The questionnaire will be adapted for the specific situation of cancer survivors. Perceived social support will be measured with the SSL-I. Perceived peer support will be measured with SSL-D and SSL-I subscales that will be developed for the purpose of the study. All secondary outcomes will be assessed at all time points. | — |
Contacts
Public ContactLinda Küsters
PO Box 2960 Chiba 3.21
Outcome results
None listed