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Explorative research: communication in palliative care in progressive pulmonary fibrosis

Explorative research: communication in palliative care in progressive pulmonary fibrosis

Status
Active, not recruiting
Phases
Unknown
Study type
Observational
Source
NL-OMON
Registry ID
NL-OMON29067
Enrollment
30
Registered
2021-02-19
Start date
2021-03-01
Completion date
Unknown
Last updated
2024-02-28

For informational purposes only — not medical advice. Sourced from public registries and may not reflect the latest updates. Terms

Conditions

IPF

Interventions

Sponsors

Pendersfonds
Lead Sponsor

Eligibility

Inclusion criteria

Inclusion criteria: In order to be eligible to participate in this study, a subject must meet the following criteria: - IPF diagnoses by the ATS 2018 criteria OR - Informal caregiver of a patient with IPF diagnosed by the ATS 2018 criteria; OR - Bereaved informal caregiver of a patient with IPF diagnosed by the ATS 2018 criteria*;

Exclusion criteria

Exclusion criteria: - Not able to speak Dutch; - Not able to work with Pexip ; - Patients with other chronic lung diseases; - Patients <18 years; - Patients on waiting list LoTX

Design outcomes

Primary

MeasureTime frame
interview data

Contacts

Public ContactLian Trapman

st Antonius ziekenhuis

l.trapman@antoniusziekenhuis.nl0883201545

Outcome results

None listed

Source: NL-OMON (via WHO ICTRP)