ENGLISH: dementia, dementia caregiver, coping, quality of life, self-efficacy, stress, communication, perspective taking, cost-effectiveness, psychosocial intervention. DUTCH: dementie, mantelzorg, coping, kwaliteit van leven, vetrouwen in eigen kunnen, stress, communicatie, empathie, kosteneffectiviteit, psychosociale interventie.
Conditions
Interventions
SHARE [Support, Health, Activities, Resources, Education]. SHARE is designed for dyads dealing with early-stage dementia to enhance skills of the dyad to cope with changes and stressors that might be
the potential impact on relationships and communication’, 'Values and preferences regarding care’, ‘Time for yourself and for each other’, ‘Help from others' and an optional family session. The interv
Sponsors
Netherlands Institute for Mental Health and Addiction (Trimbos-instituut)
Eligibility
Inclusion criteria
Inclusion criteria: Dyads are eligible to participate in this study when: • there is a diagnosis of dementia (except fronto-temporal dementia); • they are community-dwelling; • they are able and willing to talk and think about the future; • there is some awareness and insight in the symptoms; • the family caregiver is the primary responsible person in the future, is well aware of the life of the person with dementia and is able to evaluate changes in the person with dementia; • the person with dementia and the family caregiver live nearby and have a close relationship, the caregiver should at least visit the person with dementia weekly (or more often); • the person with dementia has a score of 15 or higher on the MMSE (Mini-Mental State Exam; Folstein, Folstein & McHugh, 1975); • the dyad masters the Dutch language.
Exclusion criteria
Exclusion criteria: Dyads are excluded when: • The family caregiver or person with dementia receives psychological treatment that may interfere with the intervention (e.g. for depression and/or anxiety).
Design outcomes
Primary
| Measure | Time frame |
|---|---|
| Quality of life (person with dementia) and self-efficacy (caregiver) | — |
Secondary
| Measure | Time frame |
|---|---|
| Stress, communication in the relationship, perspective-taking (caregiver), economic evaluation from a healthcare and societal perspective, extent in which future care plan and learned communication skills were helpful for the person with dementia and caregiver. | — |
Contacts
Public ContactMarleen Prins
Trimbos-instituut
Outcome results
None listed