The emotional functioning of caregivers of people with Amyotrophic Lateral Sclerosis (ALS).
Conditions
Interventions
A psychological supportprogram based on Acceptance and Commitment Therapy.
Sponsors
University Medical Center Utrecht
Eligibility
Inclusion criteria
Inclusion criteria: In order to be eligible to participate in this study, caregiver-patient dyads must meet all of the following criteria: 1. The informal caregiver is the partner of an ALS patient 2. The informal caregiver is 18 years or older 3. The informal caregiver and the patient have access to the Internet
Exclusion criteria
Exclusion criteria: Caregiver-patient dyads who meet any of the following criteria will be excluded from participation in this study: 1. The caregiver or patient is unable to complete questionnaires due to insufficient mastery of the Dutch language 2. The caregiver is diagnosed with a severe psychiatric disorder or physical disorder 3. The patient is diagnosed less than 3 months ago 4. The patient has a life expectancy of less than six months
Design outcomes
Primary
| Measure | Time frame |
|---|---|
| The emotional functioning of the caregiver measured with the Hospital Anxiety and Depression Scale (HADS). | — |
Secondary
| Measure | Time frame |
|---|---|
| Secondary outcomes are the feelings of caregiver burden (Zarit Burden Scale) and quality of life of the caregiver (Care Related- Quality of Life) and the quality of life (McGill Quality of Life Questionnaire- Single Item Scale) and emotional functioning of the patient (Hospital Anxiety and Depression Scale). | — |
Contacts
Public ContactJessica de Wit
University Medical Center Utrecht
Outcome results
None listed