Kidney, nier, kidney transplantation, niertransplantatie, renal transplantation, self-management, zelfmanagement, patient empowerment, patient safety, patientveiligheid, quality of life, kwaliteit van leven, disease management system, ziektemanagement systeem, web-based utility, virtual coaching, medical device, creatinine meter, kreatininemeter, blood pressure meter, bloeddrukmeter, extramural care, extramurale zorg, tele-care, home-care.
Conditions
Interventions
Patients in the intervention group receive a creatinine- and bloodpressure meter to measure creatinine and blood pressure at home. From week 7-52 after transplantation, half of policlinic visits will
Sponsors
Performer: Leids Universitair Medisch Centrum
Eligibility
Inclusion criteria
Inclusion criteria: 1. Kidney transplantation (living and deceased donor); 2. Age 18 years or above; 3. Good understanding of Dutch language (read/speak); 4. Access to broadband Internet; 5. Capable of performing requested actions autonomously.
Exclusion criteria
Exclusion criteria: 1. Combined transplantation (e.d. kidney-pancreas); 2. Poor understanding of sickness/therapy; 3. Mental retardation; 4. Proven noncompliance.
Design outcomes
Primary
| Measure | Time frame |
|---|---|
| 1. Safety and usability of disease management system; 2. Effectivity: Improvement of empowerment en quality of life when using disease management system / increase of patient knowledge as a consequence of education module of disease management system; 3. Psychological impact of using disease management system on patient and caregiver: A. Increase/decrease of fear and/or other emotions; B. Impact on relationship between patient and caregiver, e.g. more shared decision making. | — |
Secondary
| Measure | Time frame |
|---|---|
| 1. User interface design factors of influence on safe and comfortable use of disease management system? 2. Possible problems and risks when using disease management system; 3. Improvement of system (based on experience); 4. Precision, accuracy and reliablity of creatinine meter in hands of patient; 5. Patient characteristics of influence on perceived usability of disease management system; 6. Effect of using disease management system on opinion about selfmanagement; 7. Implementation: A. Development of model applicable to different patient groups; B. Development of best practice for implementation of point of care creatinine meter. | — |
Contacts
Public ContactC. Lint, van
Leids Universitair Medisch Centrum Albinusdreef 2
Outcome results
None listed