Neurodevelopmental outcome and quality of life in infants with (congenital) liver disease

Congenital Liver diseases and Neurological Outcome

Status

Recruiting

Phases

Unknown

Study type

Observational

Source

NL-OMON

Registry ID

NL-OMON27464

Enrollment

Registered

2016-10-25

Start date

2016-09-01

Completion date

Unknown

Last updated

2024-02-28

For informational purposes only — not medical advice. Sourced from public registries and may not reflect the latest updates. Terms

Conditions

Neurodevelopmental outcome Congenital liver disease Biliary Atresie Liver transplantation Behavioural problems Quality of life Neurologische uitkomst Ontwikkelingsproblemen Kwaliteit van leven Aangeboren leveraandoeningen Galgangatresie

Interventions

None listed

Eligibility

Inclusion criteria

Inclusion criteria: - All infants with congenital liver disease in the Netherlands. - All infants who had a liver transplantation < 5 year in the Netherlands.

Exclusion criteria

Exclusion criteria: - Deceased infants. -Neurodevelopmental sequelae due to other problems (e.g. syndromal)

Design outcomes

Primary

Measure	Time frame
Neurodevelopmenatal outcome Quality of Life	—

Secondary

Measure	Time frame
Risk factors for impaired neurodevelopmental outcome / Quality of life	—

Contacts

Public ContactJ.L.M. Bruggink

Department of Pediatric Surgery - University Medical Center Groningen

j.l.m.bruggink@umcg.nl

Outcome results