The development of a medication-related patient-reported experience measure to better inform reimbursement decision making and clinical practice

Status

Active, not recruiting

Phases

Unknown

Study type

Observational

Source

NL-OMON

Registry ID

NL-OMON27288

Enrollment

150

Registered

2016-05-17

Start date

2014-11-01

Completion date

Unknown

Last updated

2024-02-28

For informational purposes only — not medical advice. Sourced from public registries and may not reflect the latest updates. Terms

Conditions

To develop and test a measure aimed to better understand patient experiences with (expensive) medications.

Interventions

None listed

Eligibility

Inclusion criteria

Inclusion criteria: IPF patients who 1) are prescribed Pirfenidone (current and new users), 2) can read and speak Dutch, and 3) are willing to participate. aHUS patients who 1) are prescribed Eculizumab (current and new users), 2) can read and speak Dutch, and 3) are willing to participate.

Exclusion criteria

Exclusion criteria: N/a

Design outcomes

Primary

Measure	Time frame
Perceived effectiveness Perceived side-effects Ease of use Satisfaction	—

Contacts

Public ContactMerel Kimman

merel.kimman@mumc.nl

Outcome results