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Global Growth hormone study in Adults with Prader-Willi Syndrome

Global Growth hormone study in Adults with Prader-Willi Syndrome

Status
Active, not recruiting
Phases
Unknown
Study type
Interventional
Source
NL-OMON
Registry ID
NL-OMON27149
Enrollment
72
Registered
2020-01-08
Start date
2020-09-01
Completion date
Unknown
Last updated
2024-02-28

For informational purposes only — not medical advice. Sourced from public registries and may not reflect the latest updates. Terms

Conditions

Prader-Willi Syndrome

Interventions

Participants will be randomized to placebo or growth hormone treatment for one year. After a washout period of 3 months, the patients who received placebo during the first year will be switched to gro

Sponsors

Erasmus Medical Center
Lead Sponsor

Eligibility

Inclusion criteria

Inclusion criteria: - The patient is diagnosed with PWS - The patient is 30 years or older - GH therapy was suspended at least three years before starting the study

Exclusion criteria

Exclusion criteria: - Non cooperative behaviour - Known malignancies - Poorly controlled diabetes (HbA1c > 64 mmol/mol (8%)) - Untreated obstructive sleep apnea (apnea-hypopnea index > 5) - BMI above 40 kg/m2 - Osteosynthesis material - Testosterone suppletion is not stable for three months

Design outcomes

Primary

MeasureTime frame
The primary endpoint is change in lean body mass (LBM (kg)) as assessed by Dual Energy X-ray Absorptiometry (DEXA) scan

Secondary

MeasureTime frame
Secondary endpoints are total fat mass, bone density, physical health, endurance, psychosocial functioning and quality of life.

Contacts

Public ContactAnna Rosenberg

Erasmus University Medical Center, Rotterdam

a.rosenberg@erasmusmc.nl010-7040704

Outcome results

None listed

Source: NL-OMON (via WHO ICTRP)