PKU
Conditions
Interventions
During a period of twelve months, one group will have online access to the individual phenylalanine results and the other group will continue the present procedure. Patients who have online access to
Sponsors
Academic Medical Center Amsterdam (AMC)
Eligibility
Inclusion criteria
Inclusion criteria: Patients with PKU aged 1 year and older who have been detected by newborn screening and have been continuously treated with a protein restricted diet and supplementation of aminoacids.
Exclusion criteria
Exclusion criteria: No access to the internet at home.
Design outcomes
Primary
| Measure | Time frame |
|---|---|
| 1. The effect of online availability of individual phenylalanine levels to patients with PKU on their plasma phenylalanine levels; 2. The effect of online availability of individual phenylalanine levels to patients with PKU on the frequency of their phenylalanine measurements. | — |
Secondary
| Measure | Time frame |
|---|---|
| The effect of online availability of individual phenylalanine levels to patients with PKU on the frequency. | — |
Contacts
Public ContactA.M. Bosch
AMC Afd. Kinderg./Metaboleziekten Postbis 22660
Outcome results
None listed