Chronic Heart Failure
Conditions
Interventions
Heart failure nurse specialists will complete the NAT: PD-HF during a regular home visit. The NAT: PD-HF is a one-page assessment tool that can be completed by healthcare professionals across a range
Sponsors
Maastricht University Medical Centre, Maastricht, the Netherlands
Eligibility
Inclusion criteria
Inclusion criteria: In order to be eligible to participate in this study, a patient must meet all of the following criteria: - a diagnosis of CHF according to the European Society of Cardiology (ESC) guidelines[22]; - receiving a home visit by a heart failure nurse specialist of the Maastricht UMC+, Maastricht, the Netherlands. Patients who receive a home visit are in general patients with severe CHF for whom a visit to the cardiologist or heart failure nurse specialist in the hospital is too burdensome; - classified as NYHA III or IV; - able to complete written questionnaires or participate in interviews; - able to provide informed consent. Family caregivers must meet all of the following criteria: - provide assistance and support; - able to complete a written questionnaire; - able to provide informed consent.
Exclusion criteria
Exclusion criteria: A patient already referred to the palliative care team within the previous 6 months will be excluded from participation in this study.
Design outcomes
Primary
| Measure | Time frame |
|---|---|
| 1. acceptability of the NAT: PD-HF according to the heart failure nurse specialist using a numeric rating scale (NRS) and option of free text feedback; 2. completeness of clinician completion of the NAT: PD-HF; 3. time to complete the NAT: PD-HF. | — |
Secondary
| Measure | Time frame |
|---|---|
| 1. Recruitment rate of patients and their carers and attrition at four month follow-up; 2. Change, from baseline at 4 four months in symptom burden (Dutch version of the Edmonton Symptom Assessment Scale, (ESAS)[24]); 3. Change, from baseline at 4 four months in Australia-modified Karnofsky Performance Status (AKPS) scale[25]; 4. Change, from baseline at 4 four months in disease-specific health status (Minnesota Living with Heart Failure Questionnaire (MLHFQ)[26]); 5. Change, from baseline at 4 four months in caregiver burden and positive aspects of caregiving (Family Appraisal of Caregiving Questionnaire for Palliative Care (FACQ-PC)[27]); 6. Change, from baseline at 4 four months in Care dependency (Care Dependency Scale (CDS)[28]); 7. Evidence of documented advance care planning; 8. Health service utilisation (including number of consultations with any member of the palliative care team, hospital admissions and emergency room visits) during the study period; 9. If patients die during the study period: the place of death will be recorded; 10. If patients received a palliative care consult: identified problems and management (chart review of PRADO, the electronic patient file of the Dutch Palliative Care teams); 11. Referral rate to palliative care, and the concern(s) as the cause of referral; 12. Referral to other services. | — |
Contacts
Public ContactDaisy J.A. Janssen
CIRO - Expertisecentrum voor chronisch orgaanfalen
Outcome results
None listed