Parkinson’s disease and Parkinsonisms
Conditions
Interventions
The intervention consists of a specifically trained (neurology) nurse who provide and coordinate transmural, integrated and proactive palliative care, including Advance Care Planning (ACP)
Sponsors
Radboud university medical center, Nijmegen, the Netherlands
Eligibility
Inclusion criteria
Inclusion criteria: • Capable to participate; • Able to provide informed consent; • Meeting the MDS clinical diagnostic criteria for PD, including Parkinsonisms (Postuma et al., 2015); • H&Y = 3; • Progressive deterioration in physical and/or cognitive function despite optimal therapy, according to the primary physician; and • Availability of a family caregiver or informal caregiver.
Exclusion criteria
Exclusion criteria: • Inability to communicate independently, with or without supportive communication tools. • Presence of additional chronic medical illnesses which may require palliative services (e.g. metastatic cancer). • Already receiving palliative care or hospice services. • Already participating in a clinical study for palliative care.
Design outcomes
Primary
| Measure | Time frame |
|---|---|
| % patients with documented ACP arrangements | — |
Secondary
| Measure | Time frame |
|---|---|
| - patient‘s symptom burden - FC’s burden - patients and their FC experienced quality of life - care coordination - quality of (palliative) care - cost effectiveness of the intervention | — |
Contacts
Public ContactMarieke Groot
Radboud university medical center
Outcome results
None listed