palliative care
Conditions
Interventions
Sponsors
Eligibility
Inclusion criteria
Inclusion criteria: Inclusion criteria for patients are; • Adult patients (18 years and older) • Patient has a life expectancy of less than 6 months, measured by the surprise question, and/or undergoes palliative treatment, such as palliative chemotherapy, palliative radiotherapy, palliative surgery, or other treatments that aim to improve the quality of life and/or to extend life, but do not aim to cure the disease • Patient is physically and mentally capable to respond to questionnaires and to understand Dutch. Inclusion criteria for bereaved relatives are; • Adult person (18 years and older) • Has been a contact person (first contact person) of a deceased patient and has been involved in the care of the deceased patient who died after a sickbed • The decease of the patient has been no shorter than 6 weeks ago and not longer than 6 months ago.
Exclusion criteria
Exclusion criteria: Exclusion criteria for patients are; • Comatose, deeply sedated, or dying patients • Patients who have a care relationship shorter than one week Exclusion criteria for bereaved relatives are; • A contact person of a patient who died suddenly and unexpected.
Design outcomes
Primary
| Measure | Time frame |
|---|---|
| Quality indicators palliative care: a. the number of patients that die at the preferred place b. the patients’ and family’s experienced control regarding end-of-life care c. the patients’ and family’s experienced coordination of end-of-life care d. the patients’ and family’s experienced concordant care with their needs, preferences and values e. the number of patients and families that receive care for their needs in the physical, psychosocial, and spiritual domains | — |
Secondary
| Measure | Time frame |
|---|---|
| 2. a. In which way and to what extent are the good practices implemented? b. What are barriers and facilitators of the implementation of the good practices and what are the realised conditions for future sustainability of the ‘good practices’? c. Are implementation processes realised as planned beforehand? 3. What other factors might have influenced the measured effects within the organisations? | — |
Contacts
University Medical Center Utrecht (UMCU), Department of Orthopaedics, P.O. Box 85500