Duchenne muscular dystrophy (DMD)
Conditions
Interventions
None listed
Sponsors
VU University Medical Center (VUmc);
Department of rehabilitation medicine
Eligibility
Inclusion criteria
Inclusion criteria: 1. Children aged at least 6 years, and not older than 14; 2. Children diagnosed with duchenne muscular dystrophy; 3. Children capable of walking independently for more than 150m without any supportive devices, and who are likely to be able to continue walking for more than 150m for at least one year.
Exclusion criteria
Exclusion criteria: 1. Children who underwent surgery (<6 months ago); 2. Children who are unable to follow simple instructions; 3. Children who have behavioural problems that compromise participation in the study.
Design outcomes
Primary
| Measure | Time frame |
|---|---|
| 1. From the ECWT: speed (m/min), non-dimensional speed (N_speed), net energy cost (EC) (J/kg/m), and net N_EC; 2. From the 6MWT: speed (m/min), N_speed, and the 6-minute walking distance (6MWD) (m). | — |
Secondary
| Measure | Time frame |
|---|---|
| 1. From the Life-Habits: participation in daily activities and social roles; 2. From the Borg scale: the Rating a patient’s Perceived Exertion (RPE score); 3. From the intake and physical examination: age (yrs), height (cm), weight (kg), and leg length (cm); 4. From the Brooke scale: functional capacities. | — |
Contacts
Public ContactM.A. Brehm
de Boelelaan 1117
Outcome results
None listed