Systemic sclerosis, risk perception, illness perception
Conditions
Interventions
The brief illness perception questionnaire (BIPQ) and patient drawings will be used to assess illness perceptions, risk perceptions and worries are examined by questionnaires adapted from Cameron and
Sponsors
Leiden University Medical Center
Eligibility
Inclusion criteria
Inclusion criteria: Patients included should be diagnosed with SSc > 1 year and < 2 year prior to study entry with an age of 18-55 years. Included patients have to fulfill the ACR/EULAR 2013 criteria (American College of Rheumatology/ European League against Rheumatism), have to have completed a second visit in the care program and have to have started with any kind of medication (prescribed by the rheumatologist) after the first visit. Informed consent will be obtained via written forms .
Exclusion criteria
Exclusion criteria: Patients with serious comorbidities, patients that are medically trained and/or work in a medical setting, and patients with insufficient understanding of the Dutch language will be excluded
Design outcomes
Primary
| Measure | Time frame |
|---|---|
| Results about the assessment of illness perceptions, risk perceptions and worry, their interrelations and associations with sociodemographic and clinical characteristics will mainly be descriptive, as the character of this study is exploratory | — |
Outcome results
None listed