Congenital adrenal hyperplasia, hypogonadotropic hypogonadism, growth hormone deficiency, combined pituitary hormone deficiency, Turner Syndrome or Klinefelter syndrome.
Conditions
Interventions
The study consists of 4 study arms: receiving the YESS! game and toolkit (group YT), receiving the control game and toolkit (group GT), receiving the toolkit only (group T) and receiving regular trans
Sponsors
Erasmus Medical Center
Eligibility
Inclusion criteria
Inclusion criteria: - Aged 15 to 20 years old. - Diagnosed with congenital adrenal hyperplasia, hypogonadotropic hypogonadism, growth hormone deficiency, combined pituitary hormone deficiency, Turner Syndrome or Klinefelter syndrome.
Exclusion criteria
Exclusion criteria: -Lack of a mobile phone or tablet. -Mental disability or language barrier leading to inability to use the YESS! game or the control game.
Design outcomes
Primary
| Measure | Time frame |
|---|---|
| To investigate whether there is a difference in the Self-management and Transition to Adulthood with Rx (treatment) (STARx) questionnaire score in group YT compared to group O after 12 months | — |
Secondary
| Measure | Time frame |
|---|---|
| -To investigate whether there is a difference in the Self-management and Transition to Adulthood with Rx (treatment) (STARx) questionnaire score in group YT compared to group GT and -T after 12 months. -To investigate whether there is a difference in the Self-management and Transition to Adulthood with Rx (treatment) (STARx) questionnaire score in group YT compared to group GT, -T and -O after 6 months. -To investigate whether there is a difference in the drop-out rate to the adult outpatient clinic in group YT compared to group GT, -T and -O during the first year after the last visit to the paediatric endocrinologist (i.e. one year after the moment of transfer, t=24 m). | — |
Contacts
Public ContactLaura de Graaff
Erasmus Medical University Hospital
Outcome results
None listed