Q-fever fatigue syndrome (QFS), Juvenile Idiopathic Arthritis (JIA) and Chronic Fatigue Syndrome (CFS/ME).
Conditions
Interventions
1) Patient-tailored PROfeel lifestyle advices
2) Generic dietary advice
Sponsors
UMC Utrecht
Eligibility
Inclusion criteria
Inclusion criteria: All subjects must meet the following criteria: • Age of 12-25 years old • Able to speak, read, understand and write Dutch Inclusion criteria for QFS-patients: • (Suspected) diagnosis with QFS according to the Dutch Guidelines. • Fatigue lasting for at least 6 months. • Debilitating fatigue, with detrimental effects on daily functioning (work and/or private situation). • Seropositive for C. Burnetii. • No diagnoses of chronic Q-fever, recent diagnostics (39 Inclusion criteria for CFS/ME patients: • (Suspected) CFS/ME diagnosis according to the CDC criteria. • No diagnosis of QFS. • Fatigue severity subscale (CIS8) score >39. Inclusion criteria for JIA patients: • Diagnosed with JIA, at least 3 months on stable medication and a stable disease activity score (JADAS-criteria). • No diagnosis of QFS. • Expressing fatigue as a major complaint and CIS8 score >34 (mean +1SD). • Being fatigued for at least 3 months.
Exclusion criteria
Exclusion criteria: A potential subject who meets any of the following criteria will be excluded from participation in this study: • Diagnosis of chronic Q-fever and active disease. • Cognitive impairment, estimated IQ<70. • Concomitant diagnoses that may explain the fatigue. • Any current and predominated psychiatric comorbidity with could explain fatigue (i.e. major depression disorder, presence of suicidal risk). • Owns no smartphone.
Design outcomes
Primary
| Measure | Time frame |
|---|---|
| Fatigue severity | — |
Secondary
| Measure | Time frame |
|---|---|
| Self-efficacy and quality of life | — |
Contacts
Public ContactAnouk Vroegindeweij
UMC Utrecht
Outcome results
None listed