dementia, memory problems, caregivers, social participation, psychosocial intervention, occupational therapy, physiotherapy, welfare/ dementie, geheugenproblemen, mantelzorgers, sociale participatie, psychosociale interventies, ergotherapie, fysiotherapie, welzijnswerk.
Conditions
Interventions
In the experimental group, patients and their caregivers will receive treatment and guidance according to the newly develloped Social Fitness Programme (SFP). SFP contains up to two interdisciplinary
Sponsors
Radboud university medical center
Eligibility
Inclusion criteria
Inclusion criteria: Eligible participants for this study meet all of the following criteria: - Home dwelling patients with dementia diagnosis (MMSE ≥10); or home dwelling patients with memory problems signaled by the referring professional (MMSE 10-24); or home dwelling patients with memory problems and with high intelligence or high levels of education resulting in an MMSE-score between 25 and 30, with a primary caregivers’ score of ≥3.6 on the IQCODE-N. - Who have a caregiver who is available for informal support at a minimum of one time a week. - The patient and caregiver wish to maintain or improve their level of social participation, or to decrease their feelings of loneliness.
Exclusion criteria
Exclusion criteria: 1. No goals in total (patient and caregiver together) for social participation. 2. People who are not capable of completing the self assessment forms. 3. Co-morbidity with symptoms that interfere with actively taking part in the intervention 4. Not stable use (< 3 months on the same dose) of medication which influences cognition 5. Palliative phase of illness 6. Acute illness with hospital indication 7. Current participation in other health research 8. Received physiotherapy according to the Coach2Move protocol in the last 6 months. 9. Received occupational therapy according to the COTiD-programme in the last 6 months. 10. No financial possibilities to receive occupational therapy
Design outcomes
Primary
| Measure | Time frame |
|---|---|
| The primary outcome measure is patients' and caregivers' participation in meaningful social activities, assessed with the performance and satisfaction rating of the Canadian Occupational Performance Measurement (COPM). | — |
Secondary
| Measure | Time frame |
|---|---|
| Patients' and caregivers' quality of life (DQoL) and health related quality of life (EQ-5D); patients’ mobility (TUG), caregivers’ sense of competence (SCQ); resource utilization (RUD 4.0) and socio-demographics. Patients' frailty is measured as a covariate (EFIP). | — |
Contacts
Public ContactHanneke Donkers
Radboud UMC
Outcome results
None listed