Dementia
Conditions
Interventions
We will present statements and figures for evaluation, and the feedback from the panel as the main Delphi study instruments.
Sponsors
European Association for Palliative Care (EAPC) commissioned the task; Leiden University Medical Center, Leiden, the Netherlands is responsible for the research.
Eligibility
Inclusion criteria
Inclusion criteria: Delphi panellists should: • have expertise on advance care planning, dementia care, or advance care planning in dementia through practice, policy, research or clinical experience; • be sufficiently capable to understand, read and write English; • provide informed consent to participate in the Delphi study as indicated ahead of completing any online survey.
Exclusion criteria
Exclusion criteria: Experts will be advised not to participate if they self-identify as being overly emotionally involved in the topic. They will be excluded from participation if they do not agree that the data they provide will be collected, used and stored securely for this research.
Design outcomes
Primary
| Measure | Time frame |
|---|---|
| Consensus on a conceptualisation and recommendations for practice and policy and recommendations for further research on identified divergences. We will ask the panellists to rate importance of specific issues concerning advance care planning in dementia on a 10-point scale where 0 = not important and 10 = very important. We will use the 5-point scale used previously in the EAPC dementia Delphi study, however with the numbers shown as well, thus representing a numerical scale with verbal descriptors. The response options are: ‘strongly disagree’ (1), ‘moderately disagree’ (2), ‘neither agree, nor disagree’ (3), ‘moderately agree’ (4) and ‘strongly agree’ (5) and a do not know option. The criteria for consensus from the EAPC dementia Delphi study apply, published as a white paper at https://doi.org/10.1177/0269216313493685 | — |
Secondary
| Measure | Time frame |
|---|---|
| A comparison of consensus among the pre-defined subgroups of Delphi panellists. | — |
Contacts
Public ContactJenny van der Steen
Leiden University Medical Center, Leiden, The Netherlands
Outcome results
None listed