Lynch syndrome carriers
Conditions
Interventions
The intervention group will receive one-time printed WCRF health promotion materials between the fist en second measurement, while the control group will receive these health promotion materials afte
Sponsors
Department for Health Evidence, Radboud university medical center, Nijmegen, The Netherlands
Eligibility
Inclusion criteria
Inclusion criteria: • Lynch syndrome carriers who have been tested during the last 6 years • Between18-65 years old • Mentally competent • Able to read, write and communicate in Dutch.
Exclusion criteria
Exclusion criteria: • Participation in the GeoLynch study from Wageningen University
Design outcomes
Secondary
| Measure | Time frame |
|---|---|
| Adherence to the WCRF/AICR recommendations: WCRF/AICR score, including: - Dietary behavior: Adapted version of a short, validated questionnaire (FFQ) specifically developed to assess adherence to the WCRF recommendation for cancer prevention. - Physical activity behavior: Short Questionnaire to Assess Health Enhancing Physical Activity (SQUASH) - Smoking behavior: Standardized questions concerning age or date of starting/stopping smoking, current smoking, number of cigarettes smoked per day, and duration of smoking. - Anthropometric measurements: self-reported weight, height and waist-hip circumference. Determinants of adherence to recommendations for cancer prevention: - Health Belief Model concepts: A self-developed questionnaire adapted from existing HBM questionnaires. - Stages of Change from the Transtheoretical model of change: a questionnaire adapted from existing stages of change questionnaires. - Other determinants derived from the focus groups (e.g., enjoy life, colon surgery, habit, receiving regular colon screening). Perceived and actual cancer risk: Details on actual risk will be obtained from medical records. Cancer risk perception will be assessed by two standardized questions. Cancer worry: The cancer worry scale. Distress: The Dutch version of the Hospital Anxiety and Depression Scale (HADS) Satisfaction with and the use of the WCRF education materials and other educational materials | — |
Primary
| Measure | Time frame |
|---|---|
| Awareness will be measured using the question from the AICR Cancer Risk Awareness Survey “Do the following factors have a significant effect on whether or not the average person develops cancer?” with respect to the exposures (1) overweight, (2) insufficient physical activity, (3) diets low in vegetables and fruits, (4) diets high in red meat, (5) cured / processed meats, (6) alcohol, and (7) smoking. Other non-related factors are added to this list. | — |
Contacts
Public ContactAnnemiek Visser
Radboud university medical center - Department for Health Evidence (133)
Outcome results
None listed