Advanced cancer (gevorderde kanker)
Conditions
Interventions
n.a.
Sponsors
Integraal Kankercentrum Nederland (IKNL)
Eligibility
Inclusion criteria
Inclusion criteria: All patients with metastatic cancer are eligible for inclusion with two additional criteria: - patients with breast cancer are eligible when metastasis are located in multiple organ systems. - patients with prostate cancer are eligible for inclusion when their cancer is castration resistant. • they are older than 18 years • they are able to complete a Dutch self-report questionnaire • they understand the objective of the study and they have signed the informed consent Relatives of included patients are eligible for inclusion if; • they are chosen by the patient as relative • they are older than 18 years • they are able to complete a Dutch self-report questionnaire • they understand the objective of the study and they have signed the informed consent
Exclusion criteria
Exclusion criteria: Patients and their relatives are excluded for participation in the study if; • the treating physician believes the patient is not able to participate in this study • they have a poor expression of the Dutch language • they suffer from dementia • they have a history of severe psychiatric illness
Design outcomes
Secondary
| Measure | Time frame |
|---|---|
| Health care needs and consumption, shared decision making, social support, illness perception, (dyadic) coping, resilience, and body image. Perceived burden, personal self-care, pre-death grief, impact of death, openness of communication about illness and death, and evaluation of services is also measured in relatives. | — |
Primary
| Measure | Time frame |
|---|---|
| Experienced quality of care and quality of life in patients with advanced cancer and relatives. | — |
Contacts
Public ContactJanneke van Roij
Outcome results
None listed